Tax-exempt organization · Files a Form 5500 · State registration on file
NATIONAL ORGANIZATION FOR RARE DISORDERS INC
Also filed as THE NATIONAL ORGANIZATION FOR
7 KENOSIA AVENUE, DANBURY, CT 06810-7395
EIN
13-3223946
Tax-exempt status
501(c)(3) charitable, religious, educational
IRS · 2026-09
Deductibility
Contributions are deductible
IRS · 2026-09
Foundation classification
Publicly supported charity (170(b)(1)(A)(vi))
IRS · 2026-09
IRS ruling date
1989-05
IRS · 2026-09
Latest tax period on file
2025-12
IRS · 2026-09
Revenue (latest 990)
$34,577,196
IRS · 2026-09
Assets (latest 990)
$66,900,297
IRS · 2026-09
Florida registration
Active · Foreign not-for-profit corporation
FL Div. of Corporations · 2026-07-10
Florida document number
F05000000220
FL Div. of Corporations · 2026-07-10
Registered in Florida
2005-01-05
FL Div. of Corporations · 2026-07-10
Registered agent
REGISTERED AGENTS LEGAL SERVICES, LLC
FL Div. of Corporations · 2026-07-10
Last registry activity
2006-11-28
FL Div. of Corporations · 2026-07-10
Benefit plan 2, 2024 filing
403(B) THRIFT PLAN FOR EMPLOYEES OF THE NATIONAL ORGANIZATION FOR RARE DISORDERS, INC.
DOL · 2025-07-31
Participants (start of year)
158
DOL · 2025-07-31